pku watch
by Eleanor Weetch
Dietitian Advisor NSPKU
Pictorial guide: an NSPKU
resource
This handy picture guide to the PKU diet was last
updated in June 2005 and since then there have
been many changes to the ACBS foods with new
arrivals, discontinuations and more modern look-
ing packaging.
I know that many of you are waiting for the new
version and the good news is that it is at the printers
and should not be long before it is ready.
As well as updating the ACBS foods I have up-
dated the crisp section. Some ‘free’ crisps have
gone but others have taken their place. Since the
last amino acid analysis cassava/tapioca crisps
which contain other free ingredients have been
allowed as ‘free’; fruit crisps too. There has been a
big increase in vegetable (other than potato) crisps
and these are featured as well as the old favourites
such as Quavers and Hula Hoops. We are currently ana-
lysing Prawn Crackers for phenylalanine content as they
NSPKU pictorial guide
are tapioca based but how much phenylalanine is in the
% of prawn used? All will be revealed.
A notice on availability will be published in NHD and
on our web site at www.nspku.org
The guide costs are as follows:
Pages and in display folder £15 with simple things. The new section gives many ideas of
All pages only (no folder) £12.50 very easy activities which can be done at home; every-
Updated pages only £2.50 day things which can make a difference and can be re-
peated time and again. It might be much more appeal-
Order from info@nspku.org or ing for a child to eat their own decorated biscuit using
NSPKU writing icing and hundreds and thousands or little choco-
PO Box 26642 late shaped rabbit if they have made it them-
London N14 4ZF selves. Information is given on moulds and
packaging which would not disgrace
Let’s learn about PKU the most upmarket chocolatiers.
The more a child can The decorating table at the
learn about their condition, conference was the most
understand the diet and popular with everyone – it’s
treatment, the more able all in the appearance and
they will be to manage it doing it yourself!
for themselves. Parents Again notice will appear
are then much happier in NHD and on our web
about letting go and site.
allowing the child to
develop and become Diet information booklet
an independent young 2008/9
person. Another publication
The Let’s Learn about PKU also being up-dated is the
fi le covers ages 7-11 years basic diet information book-
and 12 to adulthood but the
W
early years are very important.
h
let. This booklet contains basic
a
e
?
t
’
A new section is now written for the
s

g
exchanges, ACBS foods, free foods
o
ing to
b
e

f
r
e
including manufactured foods. I hope
young child (up to 6 years old). It is not easy to include newly analysed foods too so that
to say when learning starts as all children are different each edition of this publication is really something to
but having had three of them I believe it’s never to soon look forward to receiving.
28 NHDmag.com July ‘08 - issue 36
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